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Mike Robinson Epilepsy 14 hours ago / Santa Barbara, Alberta


Epilepsy Almost Killed Me, Cannabis Saved My Life: Jade's Story

The fear of (SUDEP) or Sudden Unexplained Death In Epilepsy is one those of us with Epilepsy must face daily:

Writing about Epilepsy has to be one of my favorite topics because it effects me every day. Even at this moment I’m thinking about what time it is, how much sleep I much get as I’ve worked a long day and will travel tomorrow for the second time this week on Mass Transit. Life is on the edge even with Cannabis so eloquently doing it’s job controlling seizures. Onset of Epilepsy is often sudden and sometimes with no explanation. Although it’s theorized and even proven in some cases to be genetic and in others caused by trauma to the brain before or after birth. Either way – seizures are life threatening and Jade shares this common thread. In our world that makes her like a sister to me, like an aunt to Genevieve. Life with Epilepsy can be beyond a lonely struggle even with people around you, cannabis can make such a difference for so many and give them freedom. It gave Jade her life back. I asked her how this all started…

“At 13 years old, I left my biology class to go use the restroom and woke up two hours away in a major hospital. They said I had a grand mal seizure. The doctor started speaking with me and asked me if there any other times I’ve ever felt funny and I mentioned several where objects would appear bigger or smaller than they were or sounds would be louder or much quieter. I realized they were and something was wrong.” actually were, sometimes things would smell different And I would get a fruity or metallic taste in my mouth.” This is referred to an an aura. Some people with epilepsy like both Jade and I have a warning sign that is often a seizure already occurring on a smaller level. Whether it’s a smell a taste or seeing a color, that aura can save your life if you act upon it and find a soft place to lay down before something happens where there’s nothing sharp you’re going to hit. Can you imagine life like that? We live it. Imagine having that happen and not knowing why… ever? Kids like our Genevieve live that life.

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Jade went on: “It was at that point I was diagnosed with Temporal Lobe Epilepsy with AIWS ( Alice in wonderland syndrome). “Alice in Wonderland Syndrome (AiWS), also known as Todd’s syndrome or dysmetropsia, is a disorienting neuropsychological condition that affects perception. People may experience distortions in visual perception such as micropsia (objects appearing small), macropsia (objects appearing large), pelopsia (objects appearing to be closer than they are), or teleopsia (objects appearing to be further away than they are). Size distortion may occur in other sensory modalities as well.

“As you can imagine I was immediately put on medicine and have been on every medicine in the book treat and prevent seizures, none of them completely worked and most had such horrific side effects it wasn’t worth it. The seizures stopped for awhile when I was in high school but we weren’t sure why at that point, but now I know it was because I was smoking pot.” And this isn’t uncommon, self medication occurs rather frequently with teens that have ADD, ADHD, Epilepsy, Autism, and so much more. Sure, society can call it ‘getting high’ and make kids think they’re smoking something that sounds like kitchenware (pot) , but the bottom line of it is expert and expert have spoken up in these fields about medicinal cannabis and self medication. It’s something that occurs due to the fact our bodies have an Endocannabinoid System that reacts to incoming cannabinoids such as THC and CBD. When an individual with these type of diagnosis intake cannabis it eases the symptoms per literally 100’s if not 1000’s of studies.

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I asked Jade how she ended up intubated in ICU. She shares a photo that’s horrifying to me. I used it because people need to know that people they see in life with Epilepsy may be having a difficult time and not sharing that with you. We know our ‘disorder’ is taboo and we already feel like a burden. Many of us have decided that this word Epilepsy will never define who we are and live on. We do things that break the stigma. In order to get to the desk at work in which I’m typing from it took an Uber, a Train, a Bus, and another Uber. 10 hours later I’m at work out of town for 4 days. Sure, I’ve seized in public and so has Jade. It’s part of our lives and we must live through it. She went on to tell me more, “I eventually grew out of my rambunctious phase so to speak, and the Seizures came back with a vengeance. I didn’t expect that, medications were failing me.” It’s estimated that 30% of patients with Epilepsy like Jade and I fail to respond to medications. With kids like Genevieve they call this intractable epilepsy – with us adults it’s severe refractory. With this? Cannabis is our option to survive. Those I know that have what’s called ‘status events’ or go into ‘status epilepticus’ a state of back to back grand mal seizures that are life threatening and cause the death of approx. 50,000 patients per year. Jade sadly went into Status. With her life on the line she was ordered to some of the top doctors in the nation.

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“I went to the mayo clinic after that SUDEP scare and was told there’s no cure for my type of epilepsy and that 1 out of every 100 seizures that I have could be fatal, but thankfully was given advice that medical cannabis could offer some me relief. I took the advice and haven’t been in that situation again. I don’t wan’t to die young. I shouldn’t have to think about that, but with that going on I think most people do. Then the laws, I thought it would be easy but it’s not. The big problem is where I live is that medical cannabis isn’t yet available so I must travel far to get medicine I need to function on a daily basis.” And she’s not alone. Many people like her across America are by far not free from this type of scrutiny due to their zip code. We feel fortunate in California to have access, although medicinal programs are hindered bad by the recreational laws, at least we can get the cannabis we need. ” I don’t want to worry about dropping to the floor and causing who knows what type of damage to myself or surroundings. Cannabis has been the only thing that has been substantially effective in treating the seizures.”

Thank you Jade! More patients are coming forward by the day. Every one that does makes a huge difference in changing the views about the plant. People are opening their eyes. “Maybe it isn’t a bad thing like the government said was my first thought after hearing about Jade.” Thomas Baring of Maine told me yesterday in a conversation today about a story I’m working on about his cousin. People’s minds are definitely open nowadays and we need to keep letting them know about our success!

Mike Robinson, Cannabis Patient, Activist, Speaker ~ Former Dir. of Communications – American Academy of Cannabinoid Medicine

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Brianne Campbell 22 hours ago / TORONTO, Ontario

This is why it's so important to buy CBD from a legal source in Canada. As always, interesting to see what our neighbours to the south are dealing with because of all the grey areas in state laws vs federal laws. https://www.theatlantic.com/health/archive/2019/01/cbd-food/580483/

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The Sad News About CBD Cupcakes

The Atlantic

Cannabidiol-infused foods won't get you high, probably won't cure your anxiety, and are very likely illegal. On the plus side, they still taste good. As I stood at the window of a Weed World Candies truck on Manhattan's Sixth Avenue last week, a gray-haired man I didn't know tapped me on my shoulder.

https://www.theatlantic.com/health/archive/2019/01/cbd-...

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22 22 hours ago / Caledon, Ontario

https://420intel.com/articles/2019/01/17/shocker-another-dilutive-aurora-cannabis-acquisition

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Shocker! Another dilutive aurora cannabis acquisition

420 Intel

The marijuana industry advanced by leaps and bounds in 2018, with our neighbor to the north becoming the first industrialized country in the world to legalize recreational marijuana, and only the second overall behind Uruguay. In doing so, the legal cannabis industry stepped out of the shadows and into the spotlight of fast-growing, legitimate business models.

https://420intel.com/articles/2019/01/17/shocker-anothe...

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  • From 22

    As a investor, I read everything i can get my hands on; positive and negative.
    THEN i decide to do, or not do..

    • From Brianne Campbell

      Great strategy - there sure is a lot of reading to do at this point!

JADEO Events and Education 22 hours ago / Toronto, Ontario

Interested in an education in Cannabis? Here are some of the educational courses available in North America. https://www.thegrowthop.com/cannabis-news/heres-every-cannabis-college-course-you-can-take-in-u-s-and-canada

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Here's every cannabis college course you can take in U.S. and Canada

The GrowthOp

Want a job in cannabis? Start with these education opportunities It turns out if you're interested in starting a career in the cannabis industry after graduation, you can jump on a path at many schools that'll help you land a suitable position in the industry while giving you valuable experience.

https://www.thegrowthop.com/cannabis-news/heres-every-c...

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  • From Brianne Campbell

    Great list! It's great to see so many Canadian colleges and universities preparing students for careers in cannabis.

  • From Kenneth Joaquin

    This is amazing, a lot of people don’t realize the growth in the cannabis industry as well as it’s huge economic advantage!

Janelle Simone 22 hours ago / Scarborough, Ontario

This is such a great initiative. So many doctors seem unaware of the medical progress being made with cannabis this will allow them to stay up to date. I hope many doctors participate. https://botaniqmag.com/2019/01/cannabinoid-education-network-launched-to-inform-doctors-about-medical-cannabis-breakthroughs/

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'Cannabinoid Education Network' launched to inform doctors about medical cannabis breakthroughs

BotaniQ Magazine

A "Clinical Cannabinoid Education Network" (CCEN) launched on Jan. 16 that aims to provide "an educational platform for medical practitioners who want to learn more about the science of cannabis and its place in their clinical practice." The goal of CCEN, according to a release, is to "educate and inform physicians about the latest breakthroughs related to medical cannabis."

https://botaniqmag.com/2019/01/cannabinoid-education-ne...

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22 1 day ago / Caledon, Ontario

https://www.cnbc.com/2019/01/15/americans-more-likely-to-die-from-opioid-overdose-than-car-accident.html

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Americans more likely to die from opioid overdose today than car accident

CNBC

Americans are more likely to die from accidental opioid overdoses today than from car crashes, according to a study released Monday from the National Safety Council. The group analyzed preventable injuries and deaths in 2017 and found the odds of dying by accidental opioid overdose to be 1 in 96 and the odds of a motor vehicle crash 1 in 103.

https://www.cnbc.com/2019/01/15/americans-more-likely-t...

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  • From 22

    Incredible Stats and Facts!!!

    • From Michael Joseph

      It is crazy to believe something that was created to “help” people, has created the opposite outcome, with detrimental results. Cannabis on the other hand has taken the lives of ZERO. Facts will always be the truth.

  • From Brianne Campbell

    Wow! This is nuts!

  • From Janelle Simone

    I saw these stats yesterday and found it extremely alarming. What's more alarming is how many doctors, organizations etc. still continue to push opioids on patients despite the research and evidence!

Natasha Fierce 1 day ago / Toronto, Ontario

I love going to New York!! Theatre, parks, shops, bars, restaurants, entertainment, lively people and culture! Now imagine if recreational cannabis becomes legal in this bustling influential city, it'll definitely be a step towards mainstreaming cannabis. https://www.marketwatch.com/story/why-new-yorks-plan-to-legalize-cannabis-for-adult-recreational-use-is-a-big-deal-2019-01-16

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Why New York's plan to legalize cannabis for adult recreational use is a big deal

MarketWatch

By New York Gov. Andrew Cuomo's plan to legalize cannabis for adult recreational use in the Empire State is a milestone in the push toward full legalization of the substance in the U.S., experts said Wednesday.

https://www.marketwatch.com/story/why-new-yorks-plan-to...

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  • From Michael Joseph

    The world is watching. This would be an excellent shift in the right direction for cannabis legalization in the USA.

    • From Connor Christine

      So true!

Natasha Fierce 1 day ago / Toronto, Ontario

"California endorsed a rule Wednesday that will allow home marijuana deliveries statewide, even into communities that have banned commercial pot sales." https://www.usatoday.com/story/news/2019/01/16/california-oks-statewide-marijuana-deliveries/2599927002/

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Cannabis deliveries OK'd in California: 'The public spoke loud and clear'

USA TODAY

CLOSE LOS ANGELES - California endorsed a rule Wednesday that will allow home marijuana deliveries statewide, even into communities that have banned commercial pot sales. The regulation by the state Bureau of Cannabis Control was opposed by police chiefs and other critics who predict it will create an unruly market of largely hidden pot transactions, while undercutting control by cities and counties.

https://www.usatoday.com/story/news/2019/01/16/californ...

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  • From 22

    Wow, surprised but pleased...

JADEO Women's Health 1 day ago / Toronto, Ontario


Women in Cannabis Wednesday: Edition 1 - Laura Chodola

Laura Chodola, Westside mom and serial entrepreneur; Tealish Fine Teas, JOYN Botanicals

As we’ve welcomed the new year, the team at JADEO has been putting our self-care into greater focus and wanted to get support from women in cannabis who seem to have it all going on. We lined up some Q&As with some cool women in cannabis as inspiration to lead balanced, career-driven lives.

With this renewed sense of interest in our overall well being, we asked a top Torontonian entrepreneur and mom to give us insight into how she maintains a healthy routine while running a company, or two. We caught up with her at her westside tea boutique in Roncesvalles, which acts as a flagship for her tea and wellness lifestyle brand, Tealish. You might recognize the iconic tea brand from large and small gift retailers across Canada, or their flagship shop which was born on Queen Street West and migrated to the charming west side neighbourhood of Roncesvalles in recent years.

Laura shared her personal tips in self-care mastery and gave us insight into what it’s like to be taking a leap into the cannabis space after 14 years in the tea biz, with her founding partner and husband, Michael Rachmel.

Before we dive into your juicy self-care tips, can you give our readers a little background on what made you want to start a tea business and a give us quick glimpse into the journey that brought you to now?

My husband Mike and I started Tealish many years ago, and have always had an interest in food, drinks, and natural products. We were known as trailblazers in the tea industry, starting Tealish on Walnut Street in 2005, which was Toronto’s first modern tea shop. We’ve since grown our business to serve many retailers, restaurants, and cafes across Canada and have expanded our product offering from tea to many other wellness products that we feel fit seamlessly into a lifestyle that our brand promotes.

You’ve recently founded a Biotech Company called JOYN Botanicals that sounds a bit ahead of its time. Can you tell us more about it?

We are big believers in herbal medicine, essential oils, homeopathy, and all around holistic lifestyles, and are passionate about educating customers regarding herbal therapeutics. My love for health, healing, and hydration has lead the way for many of the teas and products we’ve developed since we began Tealish 13 years ago. Because we saw such an excellent fit between tea and cannabis as part of that wellness lifestyle, we set out to create a way to blend cannabis into tea in a seamless and elegant way.

This idea led to us found our startup, JOYN botanicals, where we have created technology that turns cannabis oils into a water-soluble powder. While we aren’t currently making cannabis tea, we are gearing up to partner with or serve licensed producers, as the law permits. By developing an edibles technology, we are able to pursue opportunities in the industry that will enable us to produce teas with the benefits of cannabinoids for the Canadian market. Both Mike and I are very excited about the possibilities that lay ahead with Joyn.

What is the inspiration behind the name?

The name JOYN came from both the word Joy and Join. The purpose of our technology is to join water and cannabis together seamlessly, resulting in more choice for consumers when it comes to healthy cannabis beverage options. We believe herbal medicine and cannabis experiences can be joyful, so it all kind of came together organically from there.

What made you so enthusiastic about developing a brand with this form of consuming cannabis?

We were very excited to develop this technology because it is completely unique, and has massive potential to elevate and simplify the cannabis beverage market. Ultimately, it's all about the consumer and giving more choice to consume cannabis in ways beyond smoking and vaping. Many of the cannabis beverages we have tried in US markets are not good at all, and it was our goal to change that!


Self-care Rituals

Let’s look at your life in a day. How do you fuel yourself to get out the door with stamina while getting two kids fed and ready for school?

To begin my day I practice detox principles with a cup of hot water with lemon to hydrate while I come to life. Next, I like to sip a strong bulletproof coffee while I prep the kids’ breakfasts and get lunches organized. This is also when, on days when I have that perfect amount of ‘extra time,’ I make my morning superfood smoothie. I love getting experimental with combinations that I read about on goop, well + good, or WuHaus. One of my most perfected smoothie recipes includes mango, coconut milk, some spinach, matcha, and our CBD powder. The polyphenols from the tea give me a cheery boost of steady energy while the CBD fights inflammation, relaxes me just a titch and keeps my nervous system in check.

When do you workout?

Usually, after I drop the kids off, I do some cardio or go to yoga class. A current fave is Breathe Studio in the Junction. It’s in this little pocket of the day when I feel I can best make time, and getting in fitness always helps the rest of my day go more smoothly. I am usually sipping tea from a travel water bottle, and love trying out new brands. Because I design and create product lines for Tealish, I always love trying designs from other companies to see what works best in my own lifestyle, so I can curate for our customers with total confidence.

You’ve arrived at the office. What key elements have you chosen to create an inspiring workspace?

I start by saying good morning to the team as I arrive at the shop, where our office and design studio lives nestled at the back. I try to be mindful of creating a positive work environment with the energy I bring with me to support and encourage the staff I lead. I’ll chat with everyone for a few minutes as I fill up a large glass of water and perhaps prepare a cup of daily detox tea to bring to my desk. I always have a few beverages going. (laughs) Some tease me for always having 3 different drinks on the go throughout the day, but I see hydration as a super important element of wellbeing. Next, I prepare some essential oils in the diffuser, turn on some chill/focus music, and open up my laptop to jump into the workday.

It smells great in here and your office is adorable; the art, the furnishings, the big windows.

Thank you! I love surrounding myself with beautiful things and plants, so the office aesthetic has been designed with these sensibilities. I think it’s important to have a lot of natural light and that everywhere you glance is another thing you enjoy the sight of!

It can be hard to focus even in the best of spaces. What products do you incorporate to get you in the zone at work?

I really feel that essential oils help to keep the momentum up, which is why after being so into them for years we began blending our own. Today I am diffusing AM detox - which is a blend of energizing and inspiring citrus fruits. It has a subtle smell that uplifts and motivates me.

Tell us about your lunch… UberEats or somewhere in Roncesvalles? What’s on your plate?

Hmmm… that’s tough since it changes all the time! For the most part, I try to bring some kind of fun salad for lunch which I will have prepared at home. One of my current favourites would be a salad with arugula, chicken, feta, toasted almonds, avocado, and broccoli… truly as many greens as possible with some kind of citrus vinaigrette. On days when I haven’t prepared a lunch, I love ordering Bolt Fresh bar using UberEats or the Simple Kitchen on Roncy is a favourite.

As the hours go on, how do you get through the afternoon slump? How do you keep the ideas flowing and not get fatigued?

I often have a matcha latte in the afternoon, our shop offers soy, almond, and dairy milk and is famous for great matcha drinks. Making sure to stay very hydrated all day also helps me through my afternoon workflow. If I get hungry between lunch and dinner I often will snack on a handful of almonds. I also stay energized by working at a standing desk. If I need to, I’ll get up and do some stretching, or go outside for a breath of fresh air.

Midday I always like to chat with a friend or meet up for a quick catch up somewhere in Roncy. My girlfriends are super important to me and we like to check in and see how the day is going. I often find that a quick chat will invigorate me for the rest of the day.

The workday is over and you’re back at home. Is there any special magic to your evening routine?

Our weeknights actually vary a lot. Often evenings I am out for kids activities or join friends, so typically there will be only a couple of chill nights while the rest of the week, evenings are pretty busy. I cherish the evenings I am home to unwind with tea and a good book.

After the kids are to bed, I definitely need some unwind time, and since I’m really excited about the concept of microdosing, I’ll often incorporate that into my evening wellness ritual. I don’t need a lot, so I will add a microdose of our cannabis powder to a cup of tea that I just brewed (PM Detox or Lemon Meringue are favourites), and take it easy for a little while before bed.

What kinds of things do you like to do while you sip your evening tea?

I love to read, so usually, I will read a few chapters of one of the books I have going, and then indulge in a Netflix show.

-

Stay Informed. Stay Healthy

#WeAreJADEO

Related comments

  • From Connor Christine

    Love this!

Janelle Simone 1 day ago / Scarborough, Ontario

This article really shed some light on cannabis and PTSD. When we think of that term we generally think of war vets and the like, but other traumatic events can cause PTSD and it's great to see how cannabis can help. https://merryjane.com/health/sexual-assault-survivors-share-how-weed-treats-their-ptsd

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Sexual Assault Survivors Share How Weed Treats Their PTSD - HEALTH | MERRY JANE

MERRY JANE

Did you know that a study on Gulf War veterans found that sexual assault is more likely to lead to PTSD than combat? I didn't until I spoke with writer and veteran Lauren Hough , who was brave enough to speak with me about how cannabis helps treat her PTSD symptoms stemming from a sexual assault that took place while she was in the Air Force.

https://merryjane.com/health/sexual-assault-survivors-s...

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Janelle Simone 2 days ago / Scarborough, Ontario

With Hamilton being considered one of the most cannabis-loving cities in Ontario I'm sure many of their residents are quite happy with the outcome. https://www.thespec.com/news-story/9124626-legal-pot-shops-will-be-allowed-in-hamilton-come-april-1/#.XD3xvj91yAI.twitter

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Legal pot shops will be allowed in Hamilton come April 1

TheSpec.com

Council was split on whether to opt in or out of provincial plan to allow legal retail cannabis outlets.

https://www.thespec.com/news-story/9124626-legal-pot-sh...

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  • From Michael Joseph

    I can appreciate this. The challenge will be ensuring the legal stores stand out amongst the array of already established illegal shops, here in Hamilton, Ontario.

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22 2 days ago / Caledon, Ontario

https://business.financialpost.com/pmn/business-pmn/senators-ask-fda-to-update-rules-on-certain-pot-products

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Senators ask FDA to update rules on certain pot products

Financial Post

SALEM, Ore. - Oregon's two senators on Tuesday urged the head of the U.S. Food and Drug Administration to update federal regulations to permit interstate commerce of food products containing a key non-psychoactive ingredient of cannabis. The appeal by Sens.

https://business.financialpost.com/pmn/business-pmn/sen...

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  • From 22

    Great article and clarifies some of the confusion... Hemp for human consumption is NOT legal as FDA still considers it a drug ingredient and NOT approved.... Indsutrial applications ONLY

  • From Janelle Simone

    This surely offered a lot of clarity as I realize many aren't exactly sure what the regulations are around hemp. Thanks for sharing!