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Epilepsy is a neurological disorder most commonly associated with seizures. If you or a loved one is living with epilepsy and you want to stay informed on the latest news and add to the discussion, this is the group for you. Your safety is important to us. Always seek medical advice from your own doctor before starting any wellness treatment and report any violations of our posting standards. Stay Informed. Stay Healthy.

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Mike Robinson Autism Spectrum Disorder 1 week ago / Santa Barbara, Alberta


Genevieve's Journey: Cannabis Beats The Seizures & Combats Autism

By: Mike Robinson, Medicinal Cannabis Patient & Founder, Global Cannabinoid Research Center

Watching My Daughter Thrive With Cannabis - A Miracle Everyday:

Many have watched on social media over the years as Genevieve, located in Santa Barbara California, has continued to make progress from the day she was discovered in the large compassion program I used to direct. A frantic call from her mom led to her becoming a recipient of gifted cannabis and CBD oils. At that time we gave away to hundreds every month, it was far before the regulations of Proposition 64 which put a damper on the gifting of Cannabis within the state. But Genevieve has had an effect on so many that the fight for compassion is still on with our State's Governor recently vetoing a bill that would allow the gift of life once again.

In the cover photo for this story she's walking along - nearly 1/2 mile away from home in a journey to get a Slurpee at a convenience store. It's not often we get a photo of the 3 of us together, but thankfully her therapist was with us and grabbed this shot! Walking around with Genevieve knowing that the oil that was initially brought that day, 2.5 years ago when our family was unknowingly created, has changed her life in such an intense manner continues to send chills down my spine by the day. Every step she takes with grace has me thanking my maker above. This plant has brought her from a place in which she was trapped in the world of Autism and seizing with sever Epilepsy dozens of times per day. Her life was surrounded by hospital stays, Rx medications that didn't work, therapists that had no answers, and a family that didn't know what to do. Then mom gave me a call... normally my notifications and phone ringers are on silent. That night, they were not and fate stepped into play. The Cannabis Love Story in the following link will warm your heart and go into detail about all of that! Click & Read now: The Cannabis Love Story

Every single day it seems that we get a report of a new word being used or she'll do something new. When she see's her Nana she'll grab a brush and stroke at her hair, as she knows that her gramma will come over and take her for a ride but only after her hair is brushed! So many little things like that add up to a really huge gain in development. When I met my 'client' who at the time was both for special education matters and for Cannabis oils, she was so absent from this world. Seizing, she needed oil on the spot, but still as she came out of it and showed that she was 'better' to her mom - my excitement didn't build until the following day when she verbalized "Momma" - a word that Anne Mari, now my fiance, hadn't heard in years.

The plant is simply amazing - it changes lives in ways that are so intense and saves so many people from prescription drug addiction and even death. I'm one of them. From Cancer to severe Epilepsy and so much more - Cannabis has been the answer. A simple seed turns into such a beautiful living part of the world and then that tree is harvested into so many different products that change the lives of the human race.

I'm in America where we watch the legalization in places like Canada and shake our heads. How possibly can we keep nature illegal while we watch pharmaceutical companies sell it as medicine? How long will the populous sit back and watch a government care so little about the people - about innocent kids like Genevieve? Not long - the average patient seems more educated than the average doctor. The average lawmaker doesn't even know the laws and the average officer of the law in California is even more confused about what's legal and what's not.

One thing is for sure - change is inevitable. Without it we won't see more Genevieve's walking around - we'll see them in wheelchairs and at clinics waiting for pharmaceuticals that cost a lot of money given to attempt to do what the plant easily does. For Genevieve - she's 100% free of all of them. For me? I was once prescribed over 60 pills a day, that number is under 10% of what it used to be. Our healthcare systems are not designed to treat kids like Genevieve or adults like myself - they're designed to make money.

It's time 'we the people' step up and speak out - we all can and should be heard on this issue as it's our lives and our rights. Cannabis is Medicine and should be considered an herb just as it is - there's no reason to even regulate it let alone prohibit it!

Free the weed and free kids like Genevieve to have an awesome future!

Mike Robinson


Related comments

  • From Michael Joseph

    Thank you, Mike, for sharing your daughters journey. Happy to see cannabis has provided Genevieve relief. Truly a remarkable outcome thus far.

Mike Robinson Epilepsy 1 week ago / Santa Barbara, Alberta


Mary's Story: Overcoming Epilepsy With Cannabis

A Patient’s Story Of The Search For The Right Cannabis Combo for Stopping Seizures:

Mary has been a big smile on a cell phone screen for quite some time. Battling Epilepsy she still continues to smile and send positive messages across the net. She's been a friend on social media for several years that came to me over a year ago in search of the right CBD and boy it's been a search! From brand names to now being able to create her own full spectrum mix of Cannabinoids, Mary has learned how to treat herself and diminish the use of Rx medications that simply didn't work for her. Here's her tale of what life has brought her and how she's handled it:

“At age 5 I was a typical kid just odd because I was born on my Grandma Ruth’s birthday. When I was 6 I had my first awake seizure and that answered the question of why I would occasionally let out a scream in my bedroom but when my dad, (a night owl), came to my room I would be sleeping again. I had nocturnal seizures to start.

I went to doctor after doctor and took Phenobarb, Mysoline, Tegratol, Depakote, Dilantin, Lamictal, Felbamate, Gabapentin, and more as they came out. One was toxic in my blood. Another made me so tired they gave me uppers to go with the medication just so I could function in grade school. They mixed these medications by 2s and at times 3s. Double or triple therapy and each time it mixed up my mind and felt so scary. I was 6,7,8, and it continued into my teens. The doctors calling me idiopathic and giving me yet another blood test and scrambling my brain and body to attempt to stop my seizures. I made it through high school with seizures happening in classes at times. I called them interruptions in my mind and never used them for an excuse. I applied and was accepted at a university because of my high grade point average.

uop-300x300.jpg

At 35 I found an Epileptoligist that did many MRI’s and EEG’s she told me to get a genetic test because of a skin discoloration and the calcification on the scans.They were 2 markers for a genetic mutation that can cause seizures. After so many years wondering why. Looking at my parents and 2 brothers being the only one with this health issue. Test results were that I have a mutation called TSC 2 Tuberous sclerosis Complex 2. My case was just so mild the past doctors had never seen it manifested like me. (Below is an MRI of what this diagnosis looks like in the brain)

MRI-300x146-300x146.jpg

Wow, this already is such a story of overcoming. I asked mary about surgery that she's had in the past that still did not stop the seizures and she told me all about it. It's not at all uncommon for someone with Epilepsy to have brain surgery and still continue seizing and needing medication. Surprisingly, only about 60% of surgeries end in success with no further seizures. "I had a right temporal lobe resection and hippocampus removal March 24 2014 I was 36 years old and 12 units from a M.A. at University of the Pacific. After the surgery I have not had any day seizures. Yet I can’t seem to go 5 months without a nocturnal one. The doctor prescribed Onfi, it did not help because I still had the break through seizure. I stopped that medication. I was scared because there was nothing to do but take more pills and I just wanted normalcy. Something I wanted my entire life."

sur-300x225-1-300x225.jpg

Mary went on to share even more of her story: "I have been experimenting with CBD for a few years now. My little brother gave me something called Jayden’s juice. High CBD cannibis drops. I started with a few. I got Charlotte’s Web CBD oil to try afterwards because it had a similar make up as the Jayden’s juice and seemed to be a good price. When the next seizure came instead of 10 minutes it only lasted 3 minutes. I even used the drops when I felt unusual or scared like maybe one might come on and letting the drops absorb under my tongue instantly made me feel normal. I listened in on Mike Robinson’s canna-talks online on Face Book, and I heard about products formulated specifically for seizures. Nothing comes as 100% but the high CBD I had in the past was at least making the break throughs tolerable and smaller so since the stuff that had Epilepsy in mind during formulation I thought it should be even better and it. I know that just like with medication everyone is different so I would have to find my best mix.

"I just turned 40 and I have been nearly seizure free for 8 months now. I had a big seizure in public for the first time in years a few days ago, Cannabis is excellent medicine but it’s not a cure. We all still have epilepsy but we have medicine that works now. That was the longest I have gone nearly seizure free since my surgery in 2014 and I have managed a reduction in my Dilantin by almost half. It's been nearly 8 months."

"Mike, I am so thankful that I met you and found out about Cannabis. Spreading awareness that there is another way to go is so important. I mean something besides the medications that have the effects of scaring you or putting you into a seizure like one did me. They all scramble your mind and nature is the way to go. You just have to try and keep trying and remember Love Wins."

My Response:

Mary, I have these questions 1.) How did you first learn about cannabis as medicine? 2.) What advice do you want to give to those who have epilepsy not using cannabis or CBD? 3) Did labels on products confuse you? What about all these strains?

mc-175x300-175x300.jpg

Mary’s answers:

1.) My brothers first heard of cannabis as medicine. They saw me doing all I could to stop the seizures and be “me”. They knew meds and seizures and even just the break throughs were enough to mess me up for months. I would stop eating and stop sleeping and get H pylori and ulcers and be very very sick for a long time. I needed something. Not a pill and I already had part of my brain removed.

2.) My advice to people that have seizures or kids with seizures is to try diets and try cannabis. The doctors are only trained in medications and they are the easy band-aid. They may help but there is more available to try. The Ketogenic diet does help if not work to stop seizures for some but most doctors will not tell you because the assume most patients will not do it the correct way and you have to be very strict. There are herbs and supplements that also help the brain. I had to study and the many doctors I have had have yet to mention them. I know that I would do anything to stop seizures so these are not off the table for me. Just keep trying and find what works for your brain.

3.) Labels did confuse me but I went for high CBD product with very low THC because in high school I smoked weed and got paranoid because of the THC. When everyone else was laughing, I was just wishing the high would be over. I hated the high feeling and it scared me a lot. I always listened to my brothers and I listened to Mike Robinson on amounts of what could be watered down. He would mention these topics on Facebook. These talks were very valuable to me. I learned a lot about cannabis from Mikes Facebook Chats.

wwww-300x178.png

(A very high in CBD Cannabis plant growing - so beautiful!)

From Mary herself… her story is amazing. Cannabis wins!

She's continued to fight the battle against Epilepsy by learning how to create her own medicine. Becoming self sustaining was of the utmost importance to Mary and due to that she's managed to continue to have very awesome results. "I've got my life back, thank you so much" she told me in a recent communication. We've met and created infusions together and now she does so on her own. It's always a huge victory in my heart to know that a patient that once relied on a pile of pills now finds relief in the plant. Every last one of us with knowledge on how to heal, in my hopes and dreams, will be teaching others to do the same.

Thank you,

Mike Robinson, Medicinal Cannabis Patient, Research Analyst, and Former Director of Communications, The American Academy of Cannabinoid Medicine

AACMsmall-300x103.jpg

Related comments

Epilepsy 2 months ago

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The first hard science on CBD: DEA approves cannabis drug for children with rare form of epilepsy

The first hard science on CBD: DEA approves cannabis drug for children with rare form of epilepsy  CNBCFull coverage

https://www.cnbc.com/2018/09/27/cbd-science-cannabis-pr...

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Epilepsy 3 months ago

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Study: Families of Children With Epilepsy Report Benefits From CBD Extracts

NORML

Study: Families of Children With Epilepsy Report Benefits From CBD Extracts | NORML SYDNEY, AUSTRALIA — The adjunctive use of non-standardized CBD extract products is associated with subjective benefits in children with treatment-resistant epilepsy, according to data published in the journal Scientific Reports. A team of researchers from the University of Sydney interviewed 41 families who reported using...

http://www.thedailychronic.net/2018/91301/study-familie...

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Epilepsy 3 months ago

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Epilepsy in Children

EpilepsyU

Epilepsy is the most common neurological disorder affecting children, and may be characterized by sudden, recurrent episodes of uncontrolled motor activity and, in some cases, impaired consciousness (seizures). Any condition that triggers disruptive electrical discharges in the brain can produce epilepsy. Although the underlying abnormality may not be correctable, seizures themselves can usually be controlled through drug therapy. There are a number of relatively benign genetic epilepsies of chi [...]

http://epilepsyu.com/2018/08/23/epilepsy-in-children/

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Mike Robinson Autism Spectrum Disorder 1 week ago / Santa Barbara, Alberta


Genevieve's Journey: Cannabis Beats The Seizures & Combats Autism

By: Mike Robinson, Medicinal Cannabis Patient & Founder, Global Cannabinoid Research Center

Watching My Daughter Thrive With Cannabis - A Miracle Everyday:

Many have watched on social media over the years as Genevieve, located in Santa Barbara California, has continued to make progress from the day she was discovered in the large compassion program I used to direct. A frantic call from her mom led to her becoming a recipient of gifted cannabis and CBD oils. At that time we gave away to hundreds every month, it was far before the regulations of Proposition 64 which put a damper on the gifting of Cannabis within the state. But Genevieve has had an effect on so many that the fight for compassion is still on with our State's Governor recently vetoing a bill that would allow the gift of life once again.

In the cover photo for this story she's walking along - nearly 1/2 mile away from home in a journey to get a Slurpee at a convenience store. It's not often we get a photo of the 3 of us together, but thankfully her therapist was with us and grabbed this shot! Walking around with Genevieve knowing that the oil that was initially brought that day, 2.5 years ago when our family was unknowingly created, has changed her life in such an intense manner continues to send chills down my spine by the day. Every step she takes with grace has me thanking my maker above. This plant has brought her from a place in which she was trapped in the world of Autism and seizing with sever Epilepsy dozens of times per day. Her life was surrounded by hospital stays, Rx medications that didn't work, therapists that had no answers, and a family that didn't know what to do. Then mom gave me a call... normally my notifications and phone ringers are on silent. That night, they were not and fate stepped into play. The Cannabis Love Story in the following link will warm your heart and go into detail about all of that! Click & Read now: The Cannabis Love Story

Every single day it seems that we get a report of a new word being used or she'll do something new. When she see's her Nana she'll grab a brush and stroke at her hair, as she knows that her gramma will come over and take her for a ride but only after her hair is brushed! So many little things like that add up to a really huge gain in development. When I met my 'client' who at the time was both for special education matters and for Cannabis oils, she was so absent from this world. Seizing, she needed oil on the spot, but still as she came out of it and showed that she was 'better' to her mom - my excitement didn't build until the following day when she verbalized "Momma" - a word that Anne Mari, now my fiance, hadn't heard in years.

The plant is simply amazing - it changes lives in ways that are so intense and saves so many people from prescription drug addiction and even death. I'm one of them. From Cancer to severe Epilepsy and so much more - Cannabis has been the answer. A simple seed turns into such a beautiful living part of the world and then that tree is harvested into so many different products that change the lives of the human race.

I'm in America where we watch the legalization in places like Canada and shake our heads. How possibly can we keep nature illegal while we watch pharmaceutical companies sell it as medicine? How long will the populous sit back and watch a government care so little about the people - about innocent kids like Genevieve? Not long - the average patient seems more educated than the average doctor. The average lawmaker doesn't even know the laws and the average officer of the law in California is even more confused about what's legal and what's not.

One thing is for sure - change is inevitable. Without it we won't see more Genevieve's walking around - we'll see them in wheelchairs and at clinics waiting for pharmaceuticals that cost a lot of money given to attempt to do what the plant easily does. For Genevieve - she's 100% free of all of them. For me? I was once prescribed over 60 pills a day, that number is under 10% of what it used to be. Our healthcare systems are not designed to treat kids like Genevieve or adults like myself - they're designed to make money.

It's time 'we the people' step up and speak out - we all can and should be heard on this issue as it's our lives and our rights. Cannabis is Medicine and should be considered an herb just as it is - there's no reason to even regulate it let alone prohibit it!

Free the weed and free kids like Genevieve to have an awesome future!

Mike Robinson


Related comments

  • From Michael Joseph

    Thank you, Mike, for sharing your daughters journey. Happy to see cannabis has provided Genevieve relief. Truly a remarkable outcome thus far.

Mike Robinson Epilepsy 1 week ago / Santa Barbara, Alberta


Mary's Story: Overcoming Epilepsy With Cannabis

A Patient’s Story Of The Search For The Right Cannabis Combo for Stopping Seizures:

Mary has been a big smile on a cell phone screen for quite some time. Battling Epilepsy she still continues to smile and send positive messages across the net. She's been a friend on social media for several years that came to me over a year ago in search of the right CBD and boy it's been a search! From brand names to now being able to create her own full spectrum mix of Cannabinoids, Mary has learned how to treat herself and diminish the use of Rx medications that simply didn't work for her. Here's her tale of what life has brought her and how she's handled it:

“At age 5 I was a typical kid just odd because I was born on my Grandma Ruth’s birthday. When I was 6 I had my first awake seizure and that answered the question of why I would occasionally let out a scream in my bedroom but when my dad, (a night owl), came to my room I would be sleeping again. I had nocturnal seizures to start.

I went to doctor after doctor and took Phenobarb, Mysoline, Tegratol, Depakote, Dilantin, Lamictal, Felbamate, Gabapentin, and more as they came out. One was toxic in my blood. Another made me so tired they gave me uppers to go with the medication just so I could function in grade school. They mixed these medications by 2s and at times 3s. Double or triple therapy and each time it mixed up my mind and felt so scary. I was 6,7,8, and it continued into my teens. The doctors calling me idiopathic and giving me yet another blood test and scrambling my brain and body to attempt to stop my seizures. I made it through high school with seizures happening in classes at times. I called them interruptions in my mind and never used them for an excuse. I applied and was accepted at a university because of my high grade point average.

uop-300x300.jpg

At 35 I found an Epileptoligist that did many MRI’s and EEG’s she told me to get a genetic test because of a skin discoloration and the calcification on the scans.They were 2 markers for a genetic mutation that can cause seizures. After so many years wondering why. Looking at my parents and 2 brothers being the only one with this health issue. Test results were that I have a mutation called TSC 2 Tuberous sclerosis Complex 2. My case was just so mild the past doctors had never seen it manifested like me. (Below is an MRI of what this diagnosis looks like in the brain)

MRI-300x146-300x146.jpg

Wow, this already is such a story of overcoming. I asked mary about surgery that she's had in the past that still did not stop the seizures and she told me all about it. It's not at all uncommon for someone with Epilepsy to have brain surgery and still continue seizing and needing medication. Surprisingly, only about 60% of surgeries end in success with no further seizures. "I had a right temporal lobe resection and hippocampus removal March 24 2014 I was 36 years old and 12 units from a M.A. at University of the Pacific. After the surgery I have not had any day seizures. Yet I can’t seem to go 5 months without a nocturnal one. The doctor prescribed Onfi, it did not help because I still had the break through seizure. I stopped that medication. I was scared because there was nothing to do but take more pills and I just wanted normalcy. Something I wanted my entire life."

sur-300x225-1-300x225.jpg

Mary went on to share even more of her story: "I have been experimenting with CBD for a few years now. My little brother gave me something called Jayden’s juice. High CBD cannibis drops. I started with a few. I got Charlotte’s Web CBD oil to try afterwards because it had a similar make up as the Jayden’s juice and seemed to be a good price. When the next seizure came instead of 10 minutes it only lasted 3 minutes. I even used the drops when I felt unusual or scared like maybe one might come on and letting the drops absorb under my tongue instantly made me feel normal. I listened in on Mike Robinson’s canna-talks online on Face Book, and I heard about products formulated specifically for seizures. Nothing comes as 100% but the high CBD I had in the past was at least making the break throughs tolerable and smaller so since the stuff that had Epilepsy in mind during formulation I thought it should be even better and it. I know that just like with medication everyone is different so I would have to find my best mix.

"I just turned 40 and I have been nearly seizure free for 8 months now. I had a big seizure in public for the first time in years a few days ago, Cannabis is excellent medicine but it’s not a cure. We all still have epilepsy but we have medicine that works now. That was the longest I have gone nearly seizure free since my surgery in 2014 and I have managed a reduction in my Dilantin by almost half. It's been nearly 8 months."

"Mike, I am so thankful that I met you and found out about Cannabis. Spreading awareness that there is another way to go is so important. I mean something besides the medications that have the effects of scaring you or putting you into a seizure like one did me. They all scramble your mind and nature is the way to go. You just have to try and keep trying and remember Love Wins."

My Response:

Mary, I have these questions 1.) How did you first learn about cannabis as medicine? 2.) What advice do you want to give to those who have epilepsy not using cannabis or CBD? 3) Did labels on products confuse you? What about all these strains?

mc-175x300-175x300.jpg

Mary’s answers:

1.) My brothers first heard of cannabis as medicine. They saw me doing all I could to stop the seizures and be “me”. They knew meds and seizures and even just the break throughs were enough to mess me up for months. I would stop eating and stop sleeping and get H pylori and ulcers and be very very sick for a long time. I needed something. Not a pill and I already had part of my brain removed.

2.) My advice to people that have seizures or kids with seizures is to try diets and try cannabis. The doctors are only trained in medications and they are the easy band-aid. They may help but there is more available to try. The Ketogenic diet does help if not work to stop seizures for some but most doctors will not tell you because the assume most patients will not do it the correct way and you have to be very strict. There are herbs and supplements that also help the brain. I had to study and the many doctors I have had have yet to mention them. I know that I would do anything to stop seizures so these are not off the table for me. Just keep trying and find what works for your brain.

3.) Labels did confuse me but I went for high CBD product with very low THC because in high school I smoked weed and got paranoid because of the THC. When everyone else was laughing, I was just wishing the high would be over. I hated the high feeling and it scared me a lot. I always listened to my brothers and I listened to Mike Robinson on amounts of what could be watered down. He would mention these topics on Facebook. These talks were very valuable to me. I learned a lot about cannabis from Mikes Facebook Chats.

wwww-300x178.png

(A very high in CBD Cannabis plant growing - so beautiful!)

From Mary herself… her story is amazing. Cannabis wins!

She's continued to fight the battle against Epilepsy by learning how to create her own medicine. Becoming self sustaining was of the utmost importance to Mary and due to that she's managed to continue to have very awesome results. "I've got my life back, thank you so much" she told me in a recent communication. We've met and created infusions together and now she does so on her own. It's always a huge victory in my heart to know that a patient that once relied on a pile of pills now finds relief in the plant. Every last one of us with knowledge on how to heal, in my hopes and dreams, will be teaching others to do the same.

Thank you,

Mike Robinson, Medicinal Cannabis Patient, Research Analyst, and Former Director of Communications, The American Academy of Cannabinoid Medicine

AACMsmall-300x103.jpg

Related comments